• It’s the ME/CFS

    I just spoke to my dear friend Roy Francis and he could tell I wasn’t fine despite my attempt of trying to ‘brave face it.’ He told me to rest. 😊 People who know you and know your struggle but love you anyway are special friends indeed! ME…

  • ME/CFS Payback Sucks!

    ME/CFS Payback SUCKS! Having ME is really tough. I knew my body would react to me having the audacity of having a holiday but this Sucks!! No sympathy needed, I just needed to be honest. Some people won’t realise there is a cost for ME…

  • Crispy Pan Fried Salmon

    Pan fried Salmon with smashed potatoes, asparagus, sautéed peppers and corn on the cob. If my body refuses this I won’t be happy. (Ps the salmon was steamed then fried skin side down to achieve crispy skin)

  • How Do You Like It?

    Now, don’t shout at me but I had my hair cut! 😱 It did hurt to cut it, but I can’t manage it long. This year is going to be busy, so I won’t have time to be worrying about my hair. So – honest…

  • Dragons Old and New…

    When I was little, going to sleep was this magical escape for me, as I was off to dreamland where I could slay dragons, fly on the back of the most beautiful birds and basically star in my very own story. Nowadays, it’s a battle…

  • No, I’m Not Disabled!

    I am Not Disabled! It’s society, who puts obstacles in my way, that disables me! In the news at the moment, there is the debate about the rights of a wheelchair user versus the rights of a mother with a buggy or a pushchair on…

  • I Am Not My Chair!

    I had yet another yucky experience thanks to two taxi drivers  who had very little understanding of customer service and disability rights. After feeling like I had been reduced to an object, I decided to put my emotions to good use and complain. I don’t…