• HAPPY NEW YEAR!

    Happy New Year! For me, 2019 was a year of healing, reflecting and of planting new seeds; and in 2020 I will continue to work and watch my seedlings grow. I have a lot to be sad about, but I choose to be thankful for…

  • It’s the ME/CFS

    I just spoke to my dear friend Roy Francis and he could tell I wasn’t fine despite my attempt of trying to ‘brave face it.’ He told me to rest. 😊 People who know you and know your struggle but love you anyway are special friends indeed! ME…

  • ME/CFS Payback Sucks!

    ME/CFS Payback SUCKS! Having ME is really tough. I knew my body would react to me having the audacity of having a holiday but this Sucks!! No sympathy needed, I just needed to be honest. Some people won’t realise there is a cost for ME…

  • Revitalise Was So Much Fun

    You are confined only by the walls you build yourself. This is why I had so much fun at Revitalise. People made friends with me and it had nothing to do with my ‘disability’. When a barrier came up there was a strong voice ready…

  • No, I’m Not Disabled!

    I am Not Disabled! It’s society, who puts obstacles in my way, that disables me! In the news at the moment, there is the debate about the rights of a wheelchair user versus the rights of a mother with a buggy or a pushchair on…

  • I Am Not My Chair!

    I had yet another yucky experience thanks to two taxi drivers  who had very little understanding of customer service and disability rights. After feeling like I had been reduced to an object, I decided to put my emotions to good use and complain. I don’t…

  • I Smile, Because…

    I smile, because I smile because I’m a survivor I smile because I believe in the impossible I smile because giving up is too easy, finding my way through is the only option for me. I smile because I take great pleasure in infecting people with…

  • I Was Born to Perform!

    One of my greatest achievements this year is that, after 20 years (!), I performed on stage! I really wish I could capture how momentous this was for me.  From the age of 3 I started to dance, but I’m sure my parents would say…